KIF4A Foundation works tirelessly to ensure that no rare disease family ever feels alone. We are registered on countless rare disease websites, and maintain social media pages and support groups. We aim to connect KIF4A families all over the world for support, encouragement, and information.
We may be few, but we are strong! Our foundation's goal is to raise awareness of the rare disease community with emphasis on KIF4A families. Knowledge is power!
Because KIF4A is a newly discovered gene, there is very little known about it. KIF4A maintains the primary goal of fighting for continued research to find out exactly how the gene works, and discovering working treatments to combat the effects.