Our team is a group of incredibly caring and selfless individuals with a personal connection to KIF4A. We saw a need for patient advocacy and are working tirelessly to improve the lives of those affected by KIF4A Associated Syndrome (KAS). Our team is growing by the day and would love for you to join our fight!
When we received the diagnosis of KIF4A, we were given no information. Google searches came up empty and no one could tell us what the future held. We decided that day to form KIF4A Foundation and fight so that no family ever has the same experience we did.
We intend to raise awareness of KIF4A Associated Syndrome and make information readily available to current and newly diagnosed families. Our ultimate goal is to accelerate research of KIF4A gene so that we may find a cure before the clock runs out!
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